Friends 'R' Family

ResidentInsomniac · Site Admin

Well, I went to my Psychiatrist yesterday. Michael went with me. I had asked the my Psychiatrist that since my test results from the CATscan were on the computer at the Hospital, could he look them up for me and tell me what the Radiologist had to say.

I told Dr. Kwamie that he was the only Doctor that I do trust and he knows that. I also told him that if I am going to hear "bad" news, I would rather hear it from him than anyone else because I do trust and respect him and if by some small chance I happen to become overridden with shock or emotion, then I knew that I would be with the "right" Doctor to handle it.

So, he pulled up my file on the computer and proceeded to read me the results that the Radiologist had written in his report.

My bowels are unremarkable. That is good.

My liver is unremarkable. That is good.

My spleen and appendix are unremarkable. That is good.

My pancreas is unremarkable. That is really good.

I had expected those results for those organs.

My right kidney is an inch larger than what my left kidney is. That is not good.

There are cysts on my left kidney. That is not good.

Then Dr. Kwamie dropped the bomb shell on us. I don't know who was more shocked and concerned - Dr. Kwamie, Michael or me.

In 1997 I had a hysterectomy because I had sever endometriosis and I wanted to cut the risk down of not having uterine cancer, late life pregnancy and ovarian cancer. I had fibroid tumours on my fallopian tubes, cysts on my ovaries the sizes of oranges and my uterus was covered in fibroid tumours and my cervix was severely scarred. My surgeon at the time discussed with me the benefits of leaving the ovaries in. He told me that he would remove the cysts from them and leave them in to help me through menopause. Also the risk of ovarian cancer with women who have the hysterectomy are dramatically cut. At the time, I had thought that it was a good idea.

During the hysterectomy, the Doctor attached my ovaries after repairing them to the abdominal wall.

Now for the bomb. Instead of my ovaries shrinking into tiny little nothings like they should have done by 2004; they continued to work. Oh, they have been working really hard. They are completely covered in cysts.

I have been telling the doctors for the longest time that I feel, that I know that something is growing inside of me. I told my Bowel Doctor, that I know that there is something pressing down on my bowels. I told him that after each and every colonoscopy, I feel worse than what I did prior to having it. Well, of course I would! Anyone would feel worse having all of that gas shot up inside of their bowels and a big scope going up and poking and probing around the bowels which in turn would push up on the ovaries. No wonder that I can't walk half of the time or when I do walk I am doubled over in excruciating pain. No wonder I have had bowel problems all of these years!

I have been complaining lately, well lately if you want to call the past five or six years that I feel as though I still have all my body parts because I still feel like I still have endometriosis and that my ovaries are still hurting me. I told the quack Internal Specialist that I felt something growing in there. Hey, what do I know? I am just a woman.

I pointed to the area in my abdomen where the constant pain is and he looked at the computer screen at the report and confirmed that my ovaries are exactly where I thought that they were. He did tell me that they should have had me on stronger pain meds than what I am on. No wonder they weren't really working!

I know that Dr. Kwamie didn't read me the entire report. I suppose that I began to act poorly and should have mustered up more strength and courage.

Michael was a rock for me throughout all of this. He began answering Dr. Kwamie's questions because by that point, I just couldn't stop crying.

There is a very serious concern that the cysts may have already begon to develop in cancerous cells. A couple of further tests will determine that for us. I go for an ultra sound on August 14th.

Dr. Kwamie was also enraged how everyone screwed up my prep for my CATscan and told me that if it had not been for me being on top of everything, the results would not be very good - that basically, I would not be sitting here writing this to you all now. He also told me that I was correct in canceling my ultra sound on Monday. Drinking that extra water could have done some very serious damage to my kidneys.

I asked Dr. Kwamie "off the record" if it was me or is it really that they (the medical community) really screwing up and playing Russian Roulette with my life. "Off the record" the answer was "Yes." I would never place Dr. Kwamie on the "spot" by putting him on the record regarding something like this.

He also told me that I was doing everything right this past week regarding my diabetes. He is amazed in a way that I have been able to keep on top of the blood testing - but then, he knows me. I am always on top of things.

Today, I go and find out about the echocardiogram that I had done at the beginning of July. The quack doctor still hasn't called me regarding the results. He is on vacation and has left nobody in charge of his practice while he is away. I also go and find today about the lab work that I had done on last Friday to see if it is safe for me to take my diabetic medication again.

Once again, I was right. If my kidneys are not strong enough, I will be forced to go straight on the needle which will be making me Type 1 Diabetic! All of this because the damn doctors and nurses screwed up! I found out yesterday that I was suppose to stop taking my diabetic meds three nights before having the CATscan done, not the night before!

Oh, and another thing, because of the lovely activity with my ovaries that aren't suppose to be there let alone working, they have been secreting a hormone that has a habit of helping women develop diabetes!

I have been sitting here for the past hour or so, trying to bring myself to write this because I know that by writing it, I am facing my own fears. I am also facing and accepting the facts that once again, the system has failed me. I am still in shock that I have two little organs that are not even suppose to be there and not even working are there and causing me pain literally every day! I am now facing the fear that so many other women fear - ovarian cancer. I just pray that if it is that it is benign. The abdominal wall is not where we want the cancer to be growing.

I have been doing a lot of praying. I have also been sitting here listening to my Praise Tapes. They help so much. I am listening to the Maranatha Singers. Their music is so soothing, reassuring and such a blessing. Most of their songs are the Psalms set to music.

Now, my FIGHT begins again. Somehow, I will beat this and I promise to keep everyone posted. This is not going to be what takes this Woman out of this World into the next.

I Am Woman - Hear Me Roar! I have Jesus standing right beside me.

Shirley · Graphics Manager

Lynne, I am so sorry......you can beat this just like you have been doing all along!!!!! God Bless You.....

char59 · Global Moderator

Oh Lynne, I am so sorry to hear all this. I am glad you have Michael with you and that wonderful Doctor. Please be strong. ((((HUGS)))).

nippercat · Global Moderator

Lynne, I am so sorry that you have to go through all of this. I wish I could take some of it from you, but I know its not possible, so I will pray for you and listen with my whole heart when you need someone to listen too, as you have done for me. You are such a strong woman, and you don't deserve this. You WILL beat this, I feel it in my heart.

SAM · Family Member

Dearest Lynne,

I am so sad to hear all of this! but at the same time so happy that your such a fighter, YOU ARE WOMAN!! Your a darn strong woman!!!
Your in my prayers and my talks to the angels....
If there is anything I can do for you, please let me know.
Remember you can trust me always.
The medical field is disgusting me these days!

Love from,
SAM

XO

mrsmuffin · Site Manager

Dear Lynne, i know you are strong and you'll fight this all the way!!!

shirl · Family Member

lynne, i'm so sorry to hear about what is happening. i know you're a fighter.
blessings
shirl

rayswife · Family Member

prayers and hugs